The Bee-lievers was founded by a Mandan Family to support a loved one who is diagnosed with a CACNA1A variant.  We all have 2 copies of the CACNA1A gene which is responsible for communication between brain cells.   If there is a change on a CACNA1A gene, individuals can experience lifelong symptoms including neurodevelopmental differences, epilepsy, ataxia, hemiplegic migraines, and movement disorders.

 

Currently, there are no targeted treatments or cure for CACNA1A-related disorders. 

 

We have a mission to CONQUER CACNA1A. 

We do this by spreading awareness & supporting organizations facilitating research for a targeted treatment or cure for CACNA1A - related disorders.  A maximum of 30% of our donations go to supporting this life-enhancing research.

 

We have a mission to CARE FOR OTHERS.

The individual affected by the CACNA1A variant is a sweet and cheerful girl who loves to help others feel happy.  For this reason, a minimum of 70% of our donations stay local for our Bee-Cause We Care Kits - given to local entities that help children; We Bee-lieve Therapy Scholarships - help with out-of-pocket costs for therapy; We Bee-lieve Equipment Grants - help with out-of-pocket costs for adaptive equipment.

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At The Bee-lievers, we are committed to being responsible stewards of every dollar entrusted to us. Rather than following a fixed percentage model, our Board of Directors conducts quarterly disbursement meetings to thoughtfully evaluate how funds can create the greatest impact.

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During each quarterly review, the board considers several factors, including:

• Current account balances

• Anticipated operating expenses

• The number and needs of therapy scholarship applicants

• Opportunities to advance CACNA1A research

 

Based on these considerations, funds are allocated to both our local programs—such as Therapy Scholarships, Adaptive Equipment Grants, and Bee-Cause We Care Kits—and to research initiatives focused on improving the lives of individuals living with CACNA1A variants.

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This flexible approach allows us to respond to the changing needs of our community while remaining committed to our dual mission: Conquering CACNA1A and Caring for Others. Every decision is made with the goal of maximizing the impact of each donation and ensuring the long-term sustainability of our programs.